

The Boy Whose Skin Fell Off
A year ago, 36-year-old Jonny Kennedy died. He had a terrible genetic condition called Dystrophic Epidermolysis Bullosa (EB) - which meant that his skin literally fell off at the slightest touch, leaving his body covered in agonizing sores and leading to a final fight against skin cancer. In his last months Jonny decided to work with filmmaker Patrick Collerton to document his life and death, and the result was a film, first broadcast in March, that was an uplifting, confounding and provocatively humorous story of a singular man. Not shying away from the grim reality of EB, the film was also a celebration of a life lived to the full.
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- Status
- Released
- Budget
- —
- Box office
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- Language
- EN
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Behind the camera
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Produced in
United Kingdom
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Release dates
United KingdomGB
- TVChannel 425 Mar 2004
Frequently asked questions
The Boy Whose Skin Fell Off was released on 25 March 2004.
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